Our Story

We use technology to support caregivers and promote independence.

The Dementia Association for Awareness and Support (DAAS) operates through a series of volunteers who are passionate about its mission, vision and values.

Our Mission

Our mission is to support caregivers of people living with dementia in the community by using technology that personalizes care navigation and facilitates caregiver independence. 

Our Vision

Our vision is to reduce caregiver burnout by improving wellness outcomes for caregivers.

Core Values

Building Capacity and Resilience:

Facilitating independence within the community to live well with dementia; Supporting caregivers by deliver personalized solutions to their unique challenges along the caregiving journey.

 

Responsiveness:

We are responsive to caregiver needs, to proactively assist them in prioritizing their wellness.

 

Respectful and Empathetic:

We are respectful of choices caregivers make, and provide awareness of opportunities and respect for choices made.

Our History

Our experience trying to help loved ones cope with managing the degenerative condition of dementia led us to recognize that caregivers are burdened. They are burdened by the fear of the unknown, and the stress of navigating the system on their own.  In our experience, there wasn’t a centralized process or organization that could effectively assist with answering all of the questions or finding resources to assist the families. While every situation is slightly different, meaning that solutions need to be personalized for particular circumstances, there are in fact many commonalities, and areas where caregivers could be guided along their journey.

 

We wanted to create a not for profit organization devoted to focusing on bringing awareness and support to the caregivers.  We hope that caregivers can use the technology tools to gain and maintain independence and feel supported in their journey.

DAAS recognizes that there are multiple ways to bring awareness and support to caregivers, and that not all caregivers will find the same usefulness in the same tools. At this moment, we have two technology methods for providing awareness and support:


(1) The Life with Dementia Podcast, which is produced monthly, and showcases how to live well with dementia. Our podcast host, Johnna Lowther, showcases researchers, caregivers, health care workers, family members and people living well with dementia, to share practical tips and tools for enhancing the quality of life for those people living with dementia.


(2) Tusk Platform: our online portal powered by Tusk: The Care Navigation Tool, that focuses on the wellness of the caregiver. Depending on the responses, the platform will curate a list of resources to support the caregiver with where he or she is at on the caregiving journey. The system can also allow caregivers on the care team providing support to the caregivers that are providing care to the person living with dementia as well as the primary caregiver.

We recognize that dementia is becoming more prevalent. We recognize that people are living longer. We recognize that people want to age in place with dignity and participate in their communities for as long as possible.


With baby boomers aging, the length of a caregiving journey is becoming increasingly long, and complicated, as there can be other variables for a person living with dementia in addition to the underlying dementia diagnosis. There can also be health events that decrease the caregiving capacity for the caregiver over the life of the condition. We want to support the caregivers to improve the quality of their lives along the caregiving journey.

Our podcast reaches all corners of the world. We have profiled people from various places in the world.

 

Our online tool, powered by Tusk: The Care Navigation Tool, is populated with resources from all over the world. However, the service providers that offer services are targeting Edmonton and Calgary, Alberta.